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Henrik Schönemann<p>For <span class="h-card" translate="no"><a href="https://fedihum.org/@SafeguardingResearch" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>SafeguardingResearch</span></a></span> I'm currently looking for <a href="https://fedihum.org/tags/Autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autism</span></a> / <a href="https://fedihum.org/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistic</span></a> related public material (US based).</p><p>Material that should be safeguarded & accessible, no matter what <a href="https://fedihum.org/tags/RFKjr" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RFKjr</span></a> does.</p><p>If you know of any, please reply here.<br>Best would be a link + short explanation what it is/entails + why you consider it important.</p><p>🔁☑️<br><a href="https://fedihum.org/tags/SafeguardingResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SafeguardingResearch</span></a></p>
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#autism
13 posts · 12 participants · 1 post today
Richard Littauer<p>I talked to someone at Nature about how I manage my ADHD and autism. </p><p>This article is great. Some excellent tips in here from others, too. </p><p><a href="https://www.nature.com/articles/d41586-025-01575-1" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/d41586-025</span><span class="invisible">-01575-1</span></a></p><p><a href="https://mastodon.social/tags/adhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>adhd</span></a> <a href="https://mastodon.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://mastodon.social/tags/audhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>audhd</span></a></p>
Kevin Davy<p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span> </p><p> "I thought it was just me."</p><p> Perhaps one of the most repeated phrases by those of us realising that we are autistic, especially later in life. Even in this over-connected age, it is amazing how isolated many of us were from what autism was, or indeed could look like. It's only once you start looking for yourself in the words and stories of others, that you can begin to see how varied and complex it is and yet how much is shared and similar, even if it takes on a slightly different hue each and every time. It is in this knowledge that we can truly begin to see ourselves. When we stop trying to fit any sort of outside pattern, but can begin to see the actual pattern we make and learn the ways we can help ourselves. </p><p> This is why I tag my posts with not only the autism hashtag, but also the actuallyautistic hashtag and group. It's not to keep it amongst ourselves, but to try and share it with all those who are trying to learn to see themselves. Because this is the often misunderstood truth of the actuallyautistic tag. It's not to separate us from those yet to be diagnosed. It was always meant for those who are wondering, even those who don't believe they can be and yet still find value in what we have to say, as much as for those who are beginning to believe and those diagnosed either officially, or because they have realised it about themselves. A safe place, to share, to grow and most importantly to learn from each other. </p><p> Because there was never anyone else to teach us about how to be ourselves and certainly not in the ways that we could make our lives so much better. In fact, in the past, we were more often than not simply left to being our own worst enemies, kicking ourselves when we were down and holding ourselves to standards and goals that were more than a little obsessive. For example, I have just gone through a couple of intense weeks and all because a number of things came unfortunately together. My employer had some time off, which left me doing extra hours and having greater responsibilities. What remains of my family decided that it was time to make one of their rare visits and after a marathon period of procrastination I finally had to have a plumber come round and do so work. I also had to get new glasses. All of these things are draining in their own ways, but together they have left me wiped out. But, the difference now, is that I knew that this would happen. I set my expectations accordingly and made plans to help myself recover. </p><p> This is the difference a place like this can make. I'm not sat here now beating myself up because my tiredness obviously isn't deserved, or trying to flog the dead horse that I most closely resemble, into push, push, pushing on regardless. I can be kind, I can allow myself to recover and know the ways to best do that. I can finally be realistic and all because I have learnt how to be and what it actually means for me and all from being able to "hear" the words of others. </p><p><a href="https://beige.party/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistic</span></a> <br><a href="https://beige.party/tags/Autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autism</span></a></p>
Jo-chin up, elbows up.<p>Our favorite childhood stories were written by an autistic, for autistics. Hans Christian Andersen didn’t know to call it autism, but he sure knew what it was. And he celebrated & respected it, even if sometimes the story had a sadness to it. </p><p>From being nonverbal and dimming (masking) in The Little Mermaid<br>Calling out shit in Emperor’s New Clothes,<br>Not fitting in & rejected in The Ugly Duckling, being extra sensitive in Princess and the Pea.</p><p><a href="https://mastodon.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://mastodon.social/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actuallyautistic</span></a></p>
Eric Bednarz<p><a href="https://chaos.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a>: blackbox pathology</p><p><a href="https://chaos.social/tags/audism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>audism</span></a>: specialized branch of <a href="https://chaos.social/tags/ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ableism</span></a></p><p><a href="https://chaos.social/tags/auditism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>auditism</span></a>: BIK <a href="https://chaos.social/tags/BITV" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BITV</span></a>-Test</p>
Maggie Maybe<p>May 16, 2025</p><p>CDC: Better Screening Access Drives Rise in Autism Diagnoses<br><a href="https://jamanetwork.com/journals/jama/fullarticle/2834344" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">jamanetwork.com/journals/jama/</span><span class="invisible">fullarticle/2834344</span></a> </p><p>Someone tell the lunatics at <a href="https://zeroes.ca/tags/MAHA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MAHA</span></a> please.</p><p><a href="https://zeroes.ca/tags/CDC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CDC</span></a> <a href="https://zeroes.ca/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://zeroes.ca/tags/JAMA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>JAMA</span></a></p>
Molly Cantrell-Kraig 🇺🇦<p>From LinkedIn:</p><p>“I'm Kenya Hunter, the disabilities reporter at The Associated Press. I'm working on a story pertaining to Black fathers who have children on the autism spectrum. If that's you, please send me an email and I would love to hear from you. khunter@ap.org. </p><p>PLEASE SHARE!!!!”</p><p><a href="https://mastodon.social/tags/BlackMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BlackMastodon</span></a> <a href="https://mastodon.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://mastodon.social/tags/actuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actuallyAutistic</span></a> <a href="https://mastodon.social/tags/parenting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>parenting</span></a></p>
Aaron<p><a href="https://neurosciencenews.com/dna-methylation-serotonin-asd-29112/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">neurosciencenews.com/dna-methy</span><span class="invisible">lation-serotonin-asd-29112/</span></a></p><p>Of *course* we have "abnormal" methylation of certain genes. /s</p><p>That aside, this article appeared relatively low on ableist language. My biggest reason for sharing it:</p><p>"Notably, immune activation and exposure to stress hormones are known to alter neuronal activity in the dorsal raphe (DR, a region of the brain involved in serotonin signaling), contributing to ASD development."</p><p><a href="https://techhub.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistic</span></a><br><a href="https://techhub.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <br><a href="https://techhub.social/tags/AutismResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AutismResearch</span></a><br><a href="https://techhub.social/tags/genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>genetics</span></a><br><a href="https://techhub.social/tags/methylation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>methylation</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span></p>
Aaron<p>If anybody else is interested in digging into the genetics of autism, you might find this of interest:</p><p><a href="https://gene.sfari.org/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">gene.sfari.org/</span><span class="invisible"></span></a></p><p><a href="https://techhub.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a><br><a href="https://techhub.social/tags/genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>genetics</span></a><br><a href="https://techhub.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistic</span></a></p>
Engelbert :autism:<p>Ich habe die Petition „Stop Amazon Platforming Kerri Rivera!“ unterschrieben und wollte fragen, ob ihr auch mitmacht.Unser Ziel ist es, 50.000 Unterschriften zu sammeln, und dafür brauchen wir Unterstützung. Hier mehr :<a href="https://chng.it/V8YyydHGHc" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">chng.it/V8YyydHGHc</span><span class="invisible"></span></a></p><p>Vielen Dank!Engelbert<br><a href="https://tyrol.social/tags/Autismus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autismus</span></a> <a href="https://tyrol.social/tags/actualautism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actualautism</span></a> <a href="https://tyrol.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a></p>
Jason Bratcher@hosford42@techhub.social
And then #RFKJunior Still Has the Audacity to claim #Vaccines cause #Autism ?
Bite Me, f*** off and die, #RepublicanElephants!
David Njoku<p>My wife filled out an assessment form for my son because she thinks he might be autistic. When she gave it to me to read I had a bit of a shock: every word felt like a description of ... me. </p><p>I don't know how I feel. I think the word is discombobulated. I've been reliving every incident from my life. </p><p>"Dad," my son had asked, "what would it mean if I'm autistic?"</p><p>"It changes nothing," I said. "You'll be the same loveable person."</p><p>Those are words I need to hear myself too. </p><p><a href="https://mastodon.world/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a></p>
DanyWho :verified_lgbt:<p>Wie viele Geräusche hört ihr? Ich hatte 7. <a href="https://troet.cafe/tags/autismus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autismus</span></a> <a href="https://troet.cafe/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://troet.cafe/tags/neurodivergence" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurodivergence</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a><br><a href="https://mastodon.social/tags/overstimulated" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>overstimulated</span></a> <a href="https://mastodon.social/tags/sensoryoverload" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sensoryoverload</span></a> <a href="https://mastodon.social/tags/senoryissues" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>senoryissues</span></a> <a href="https://mastodon.social/tags/adhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>adhd</span></a> <a href="https://mastodon.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://mastodon.social/tags/onthespectrum" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>onthespectrum</span></a> <a href="https://mastodon.social/tags/toomanynoises" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>toomanynoises</span></a></p>
Robot DiverUS Fuckery, Autism, seriously, what the fuck
ProPublica<p>A Teacher Dragged a 6-Year-Old With Autism by His Ankle. Federal Civil Rights Officials Might Not Do Anything.<br>—</p><p>The Garrison School is part of a special education district that had students arrested at the highest rate in the country. It had pledged to change how it disciplines kids after a ProPublica-Chicago Tribune investigation and subsequent federal probe.<br><a href="https://www.propublica.org/article/garrison-school-illinois-autistic-student-dragged-ankle?utm_source=mastodon&utm_medium=social&utm_campaign=mastodon-post" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">propublica.org/article/garriso</span><span class="invisible">n-school-illinois-autistic-student-dragged-ankle?utm_source=mastodon&utm_medium=social&utm_campaign=mastodon-post</span></a></p><p><a href="https://newsie.social/tags/News" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>News</span></a> <a href="https://newsie.social/tags/Illinois" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Illinois</span></a> <a href="https://newsie.social/tags/Autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autism</span></a> <a href="https://newsie.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disability</span></a> <a href="https://newsie.social/tags/Students" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Students</span></a> <a href="https://newsie.social/tags/School" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>School</span></a> <a href="https://newsie.social/tags/Education" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Education</span></a> <a href="https://newsie.social/tags/CivilRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CivilRights</span></a></p>
Aaron<p>Me: Can I please get a reminder for the lab work appointment?</p><p>Doctor: We don't do that.</p><p>Me: It's really important for people like me.</p><p>Doctor: We can't do everything for you. You have to take responsibility.</p><p>Me: [Thinking, irritated] What do you think I'm doing right now? Clearly, I am making an effort. [Speaking] It's not a responsibility thing. It's not like I don't try.</p><p>It's not irresponsibility if a person with ADHD and autism struggles to remember to do things. Stop turning my disability into immorality. I don't blame you for not remembering calculus. It's easy for me to do that, and hard for me to remember appointments, so I'm wrong? Are you wrong for having a hard time remembering calculus when appointments are easy for you to remember? No. Neither of us is a bad person for being forgetful of certain things. Stop treating me like I'm some kind of asshole for not being like you.</p><p>I need a new doctor.</p><p><a href="https://techhub.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistic</span></a><br><a href="https://techhub.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a><br><a href="https://techhub.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a><br><a href="https://techhub.social/tags/discrimination" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>discrimination</span></a></p>
Amici Is Me 🇵🇸 🇺🇦 🇳🇴<p><a href="https://fribygda.no/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> :neurodiversity:</p>
AutistrainABA, Lovaas, and Nazis
TrèsFluke 🍁<p>“Autism is not a simple disorder,” she says. “There are no simple answers. There are no so-called smoking guns.”<br><a href="https://mstdn.ca/tags/Autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autism</span></a> <a href="https://mstdn.ca/tags/RFKJR" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RFKJR</span></a> <br><a href="https://www.scientificamerican.com/article/rfk-jr-is-completely-wrong-about-autism-say-scientists-and-parents/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">scientificamerican.com/article</span><span class="invisible">/rfk-jr-is-completely-wrong-about-autism-say-scientists-and-parents/</span></a></p>
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