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Ian KremerExceptional <a href="https://mastodon.world/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#caregiving</a> isn't just about the tasks, it also is about the <a href="https://mastodon.world/tags/kindness" class="mention hashtag" rel="nofollow noopener" target="_blank">#kindness</a>.<a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a>

Innovative Health Initiative🧠 In <a href="https://mastodon.social/tags/BrainAwarenessWeek" class="mention hashtag" rel="nofollow noopener" target="_blank">#BrainAwarenessWeek</a>, take a deep dive into the impact of IMI and IHI projects on <a href="https://mastodon.social/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s disease 👉 <a href="https://europa.eu/!MbFHv6" rel="nofollow noopener" translate="no" target="_blank">https://europa.eu/!MbFHv6</a> <a href="https://mastodon.social/tags/IHITransformingHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#IHITransformingHealth</a> <a href="https://mastodon.social/tags/HorizonEU" class="mention hashtag" rel="nofollow noopener" target="_blank">#HorizonEU</a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#health</a> <a href="https://mastodon.social/tags/research" class="mention hashtag" rel="nofollow noopener" target="_blank">#research</a> <a href="https://mastodon.social/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a>

Ian KremerAs carers, we don't need anyone imposing their judgment on us. We welcome those who offer <a href="https://mastodon.world/tags/empathy" class="mention hashtag" rel="nofollow noopener" target="_blank">#empathy</a> and tangible support.<a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> <a href="https://mastodon.world/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#mentalhealth</a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a>

CoeusPrime<a href="https://social.linux.pizza/@detondev" class="u-url mention" rel="nofollow noopener" target="_blank">@detondev</a> not sure if this is lucid dreaming or not but around 5 years ago I discovered that with the help of <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> (yes dementia) I could go to "other" places, far removed from this one. I use this frequently as I am sure when things advance far enough this is where I will end up... <a href="http://www.livingwithlewybodydementia.com/2020/03/my-steps-down-path-to-my-retirement.html" rel="nofollow noopener" translate="no" target="_blank">http://www.livingwithlewybodydementia.com/2020/03/my-steps-down-path-to-my-retirement.html</a>

Science | The GuardianHigh street opticians could use AI to spot dementia risk with eye scan <a href="https://www.theguardian.com/society/2025/mar/09/high-street-opticians-could-use-ai-to-spot-dementia-risk-with-eye-scan" rel="nofollow noopener" translate="no" target="_blank">https://www.theguardian.com/society/2025/mar/09/high-street-opticians-could-use-ai-to-spot-dementia-risk-with-eye-scan</a> <a href="https://halo.nu/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s <a href="https://halo.nu/tags/Dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dementia</a> <a href="https://halo.nu/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#Science</a> <a href="https://halo.nu/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#Health</a>

Ian KremerThe progression of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> is unrelenting and cruel. But throughout the course of the underlying disease, and even after its final toll, we hold the power to keep <a href="https://mastodon.world/tags/love" class="mention hashtag" rel="nofollow noopener" target="_blank">#love</a> alive. <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a>

Ian KremerEven the least we can do has enormous value.<a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> <a href="https://mastodon.world/tags/kindness" class="mention hashtag" rel="nofollow noopener" target="_blank">#kindness</a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a>

CoeusPrimeAs you may recall I had finally got called for jury duty, I show up and they immediately gave me a lifetime get out of jury duty card and sadly sent me on my way. I have progressive <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> and was SO prepared to fuck with the system.. <a href="https://social.linux.pizza/tags/juryduty" class="mention hashtag" rel="nofollow noopener" target="_blank">#juryduty</a> <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> <a href="https://social.linux.pizza/tags/FuckTheDoomed" class="mention hashtag" rel="nofollow noopener" target="_blank">#FuckTheDoomed</a>

Ian Kremer"<a href="https://mastodon.world/tags/Music" class="mention hashtag" rel="nofollow noopener" target="_blank">#Music</a> does a lot of things for a lot of people. It's transporting, for sure. It can take you right back, years back, to the very moment certain things happened in your life. It's uplifting, it's encouraging, it's strengthening." -- Aretha Franklin<a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a> <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a>

Pekka Kallioniemi<a href="https://defenseofliberty.social/tags/Trump" class="mention hashtag" rel="nofollow noopener" target="_blank">#Trump</a>, when asked whether he still believes <a href="https://defenseofliberty.social/tags/Zelensky" class="mention hashtag" rel="nofollow noopener" target="_blank">#Zelensky</a> is a <a href="https://defenseofliberty.social/tags/dictator" class="mention hashtag" rel="nofollow noopener" target="_blank">#dictator</a>: “Did I say that?”I have this new game called "Lie or <a href="https://defenseofliberty.social/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a>?” whenever I see Trump's statements. Which one do you think this is?

Alex@rtnVFRmedia Suffolk UKThe "Crystal Methodist", who through mismanagement destroyed the finances of the <a href="https://social.tchncs.de/tags/Coop" class="mention hashtag" rel="nofollow noopener" target="_blank">#Coop</a> <a href="https://social.tchncs.de/tags/bank" class="mention hashtag" rel="nofollow noopener" target="_blank">#bank</a> to the point the Cooperative group lost control of it, hundreds of jobs were lost and it was taken over by a hedge fund (its recently been taken over by a mutual building society which is slightly better), is now serving 1,5 years <a href="https://social.tchncs.de/tags/jail" class="mention hashtag" rel="nofollow noopener" target="_blank">#jail</a> for defrauding his own close friend out of money when she had <a href="https://social.tchncs.de/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> (and the estate after she passed away!)<a href="https://www.bbc.co.uk/news/articles/cy9ddxn727ro" rel="nofollow noopener" translate="no" target="_blank">https://www.bbc.co.uk/news/articles/cy9ddxn727ro</a>

CoeusPrimeI have <a href="https://social.linux.pizza/tags/lewybodydementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#lewybodydementia</a> . As a side effect I have a nasty expressive aphasia which makes it hard to convey ideas. One of those ideas I would love to pound into ppls heads is their loved one has <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> and they think the best thing to do is throw a party where the patient is the center of attention. She is more likely to find him in a catatonic state..

CoeusPrimeWhat with all the horrible crap going on in the world today (<a href="https://social.linux.pizza/tags/FuckTrump" class="mention hashtag" rel="nofollow noopener" target="_blank">#FuckTrump</a>, there I feel better) when things get too messed for even my deranged mind I find solace in growing, living things... <a href="https://social.linux.pizza/tags/growyourown" class="mention hashtag" rel="nofollow noopener" target="_blank">#growyourown</a> <a href="https://social.linux.pizza/tags/cannabis" class="mention hashtag" rel="nofollow noopener" target="_blank">#cannabis</a> <a href="https://social.linux.pizza/tags/therapy" class="mention hashtag" rel="nofollow noopener" target="_blank">#therapy</a> <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a>

Brie MmmI've found a note on my office desk, in my handwriting. It reads:cyborg a16 PG 4/8? >I have absolutely no idea what it means or why I wrote it.<a href="https://venera.social/search?tag=memory" class="mention hashtag" rel="nofollow noopener" target="_blank">#memory</a> <a href="https://venera.social/search?tag=dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> <a href="https://venera.social/search?tag=SciFi" class="mention hashtag" rel="nofollow noopener" target="_blank">#SciFi</a>

Ian Kremer10 (almost) absolutes in <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> care.<a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#caregiving</a>

Science | The GuardianWhen is the correct time to diagnose dementia? <a href="https://www.theguardian.com/science/2025/feb/23/when-is-the-correct-time-to-diagnose-dementia" rel="nofollow noopener" translate="no" target="_blank">https://www.theguardian.com/science/2025/feb/23/when-is-the-correct-time-to-diagnose-dementia</a> <a href="https://halo.nu/tags/Alzheimer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimer</a>'s <a href="https://halo.nu/tags/Dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dementia</a> <a href="https://halo.nu/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#Science</a> <a href="https://halo.nu/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#Health</a>

Maggie MaybeThis sounds horrific & even though this is from Canadian data I’m gonna go ahead and print up that advanced healthcare directive fill in form that I found the other day. I don’t think my little brother would ever do this to me, and there’s nobody that would fight him to keep me alive, but I can’t imagine the horror of having dementia and then having a feeding tube stuck in me. FFS, just give me some morphine & benzos and let me sleep.“Use of Feeding Tubes Among Hospitalized Older Adults With <a href="https://zeroes.ca/tags/Dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dementia</a>” <a href="https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2830454" rel="nofollow noopener" translate="no" target="_blank">https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2830454</a> <a href="https://zeroes.ca/tags/JAMA" class="mention hashtag" rel="nofollow noopener" target="_blank">#JAMA</a> <a href="https://zeroes.ca/tags/study" class="mention hashtag" rel="nofollow noopener" target="_blank">#study</a>

CoeusPrime<a href="https://mastodon.world/@LEAD_Coalition" class="u-url mention" rel="nofollow noopener" target="_blank">@LEAD_Coalition</a> Ian question and I hope you can help. Most physicians I have met are accustomed to treat people with shall we say simple constitution, like if I go in with say the flu at 30, I get treated for flu and life is good. Now that I have <a href="https://social.linux.pizza/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> I find almost any other "normal" malady interact with the dementia to make the original problem worse. Q: what type of doctor is trained for multisystem interaction of this type?

Ian KremerLet's encourage those who have <a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> and other forms of <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> to defy the disease by living life as fully as possible as long as possible.<a href="https://mastodon.world/tags/caregiving" class="mention hashtag" rel="nofollow noopener" target="_blank">#caregiving</a> <a href="https://mastodon.world/tags/EndAlz" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndAlz</a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a>

Ian KremerOur loved ones living with <a href="https://mastodon.world/tags/dementia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dementia</a> do not need us to correct them incessantly about every little thing. They need and deserve our empathy, our support, our encouragement, and our love.<a href="https://mastodon.world/tags/Alzheimers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alzheimers</a> <a href="https://mastodon.world/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#mentalhealth</a> <a href="https://mastodon.world/tags/kindness" class="mention hashtag" rel="nofollow noopener" target="_blank">#kindness</a> <a href="https://mastodon.world/tags/quote" class="mention hashtag" rel="nofollow noopener" target="_blank">#quote</a>

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