101010.pl

Wonderdog 🏳️‍🌈Two shelves of the front bookcase vacuumed, books sorted and replaced, and I am DONE. Yet again I have overestimated how much I can do in a day. You’d think after all these years of multiple chronic illnesses I would manage better than this but oops…Vacuum cleaner staying where it is.Taking the rest of the day off from anything heavy. Ot medium. Or light, really. Might draw, if I can hold a pen. Whoops. Celebrating getting the two shelves done though! And found another few books to donate. Every one that leaves is a win. “You might want them later, dear,” says my Mum - and THIS, this is what I’m fighting against. Family hoarding tendencies. I can’t keep Every. Damn. Thing.<a href="https://bne.social/tags/FixingMyLifeOneStepAtATime" class="mention hashtag" rel="nofollow noopener" target="_blank">#FixingMyLifeOneStepAtATime</a> <a href="https://bne.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://bne.social/tags/ChronicIlness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIlness</a> <a href="https://bne.social/tags/Decluttering" class="mention hashtag" rel="nofollow noopener" target="_blank">#Decluttering</a>

Sofasophia<a href="https://digitalcourage.social/@Laszlo" class="u-url mention" rel="nofollow noopener" target="_blank">@Laszlo</a> <a href="https://fairmove.net/tags/DigitaleTeilhabe" class="mention hashtag" rel="nofollow noopener" target="_blank">#DigitaleTeilhabe</a> mit entspannenden und erholsamen Natur-Videos für Menschen mit <a href="https://fairmove.net/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> oder anderen Gründen nicht aus der Wohnung können, finde ich eine sehr gute Idee.

Nonya Bidniss :CIAverified:Physics Girl (Dianna Cowern) has finally made progress with her Long COVID with ME/CFS but has suffered significant intermittent crashes. She talks about a friend from Germany who has the same syndrome and was approved for medical assistance for dying. This is a serious disease. While the U.S. govt is destroying medical research and turning in on itself in fascism, millions of people are being left behind. <a href="https://infosec.exchange/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCOVID</a> <a href="https://infosec.exchange/tags/COVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVID</a> <a href="https://infosec.exchange/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://infosec.exchange/tags/medicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#medicine</a> <a href="https://infosec.exchange/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#science</a> <a href="https://www.youtube.com/watch?v=vqeIeIcDHD0" rel="nofollow noopener" translate="no" target="_blank">https://www.youtube.com/watch?v=vqeIeIcDHD0</a>

LaszloDigitale Teilhabe <a href="https://digitalcourage.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://mastodon.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatigue</a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#fatigue</a> <a href="https://mastodon.social/tags/sotired" class="mention hashtag" rel="nofollow noopener" target="_blank">#sotired</a> <a href="https://mastodon.social/tags/tiredmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#tiredmemes</a> <a href="https://mastodon.social/tags/funnytexts" class="mention hashtag" rel="nofollow noopener" target="_blank">#funnytexts</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonielife</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/adhdmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#adhdmemes</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a>

Chronic Illness Humor FunnyWelp! *slaps knee while getting out of bed* Time to sleep on the couch.<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a>

adrian<a href="https://mastodon.social/@juchti" class="u-url mention" rel="nofollow noopener" target="_blank">@juchti</a> Kenne selber Betroffene... haben pro Tag meistens nur ein 2-Stunden-Fenster wo sie tatsächlich was machen können ohne vom Brainfog gelähmt zu werden 😭 Bitte: teilen und unterstützen, so viel oder so wenig wie ihr euch leisten könnt 🥺 <a href="https://graz.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> und Endometriose-Forschung...Werde selber spenden. Wenn jemand außerdem einen _glaubwürdigen_ Fundraiser für <a href="https://graz.social/tags/Endometriose" class="mention hashtag" rel="nofollow noopener" target="_blank">#Endometriose</a> kennt, bitte Bescheid geben... beide trotz ihrer Häufigkeit bislang medizinisch seeehr vernachlässigt 😔 Passt auf euch auf, und schauts aufeinander ❤️

Chronic Illness Humor FunnyArtist: @dear_fragile_body on Insta<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatigue</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#fatigue</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonielife</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a>

JuchtiLotties Spendenkampagne für mehr Sichtbarkeit und Forschung für <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> steht bei 287.000 Euro. Helft, sie zu teilen, spendet, wenn ihr könnt. Wir schaffen 300.000 Euro -- gemeinsam! Danke allen, die teilen, danke allen, die spenden! <a href="https://www.betterplace.org/de/fundraising-events/49365-gemeinsam-fuer-mehr-sichtbarkeit-und-forschung-bei-me-cfs" rel="nofollow noopener" translate="no" target="_blank">https://www.betterplace.org/de/fundraising-events/49365-gemeinsam-fuer-mehr-sichtbarkeit-und-forschung-bei-me-cfs</a>

Mx. Luna CorbdenI don't see "I've never seen this list because I've been too exhausted and in pain to look up the specific symptoms before." Is that an instant Bingo?<a href="https://defcon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://mastodon.ie/@IrishMECFSAssociation/114574017272845104" rel="nofollow noopener" translate="no" target="_blank">https://mastodon.ie/@IrishMECFSAssociation/114574017272845104</a>

Katja DiehlTW MECFS Chronische Krankheit Tod

JuchtiAll die Menschen, die schwerst mit <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> erkrankt sind und schlussendlich den assistierten Suizid "wählen", um ihr Leiden zu beenden. Und auf der anderen Seite: All die Menschen, die noch nie etwas von ME/cfs und den Komorbiditäten gehört haben und nicht wissen, was hier für 650.000 Menschen abgeht in Deutschland.Mich bricht das.

Lotte SmelikWell here we go. I will do a write up in this thread of the health issues I have been going through in the last years. I meanwhile strongly suspect I will end up getting a <a href="https://chaos.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://chaos.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://chaos.social/tags/pem" class="mention hashtag" rel="nofollow noopener" target="_blank">#pem</a> <a href="https://chaos.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> diagnosis but it took me a very long time to piece everything together and to understand what is (likely) going on. Since reading about it on Mastodon helped me find a lot of information I decided to share my story too, maybe it will help others.

LaszloHi ihr alle.Meine an ME/CFS erkrankte Frau <a href="https://troet.cafe/@ErnasKind" class="u-url mention" rel="nofollow noopener" target="_blank">@ErnasKind</a> wurde gefragt, ob sie Material für einen Infostand zum Thema <a href="https://digitalcourage.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> bei einem Festival hätte. Wir sind sehr froh, dass die Veranstalter von <a href="https://digitalcourage.social/tags/AufAnfang" class="mention hashtag" rel="nofollow noopener" target="_blank">#AufAnfang</a> ( <a href="https://initiative-fm.de/aufanfang2025/" rel="nofollow noopener" translate="no" target="_blank">https://initiative-fm.de/aufanfang2025/</a> ) sich für das Thema interessieren. Neben vielen kostenlos erhältlichen Flyern und Broschüren würden wir gerne noch einige großformatige wasserfeste Plakate drucken lassen. Wenn ihr uns dabei unterstützen möchtet könnt ihr das über den untenstehenden Link tun. Danke.Boosts welcome!!!<a href="https://www.gofundme.com/f/mecfs-infostand-auf-einem-festival" rel="nofollow noopener" translate="no" target="_blank">https://www.gofundme.com/f/mecfs-infostand-auf-einem-festival</a>***Edit*** Ihr seid unfassbar toll. Weniger als 1 Stunde und das Ziel ist erreicht. Vielen Dank. Ihr könnt gerne weiter teilen. Jede Aufmerksamkeit ist gut.***Edit***

Maggie MaybeFrontiers | Low‐Dose naltrexone restored TRPM3 ion channel function in natural killer cells from long COVID patients <a href="https://www.frontiersin.org/journals/molecular-biosciences/articles/10.3389/fmolb.2025.1582967/full" rel="nofollow noopener" translate="no" target="_blank">https://www.frontiersin.org/journals/molecular-biosciences/articles/10.3389/fmolb.2025.1582967/full</a> <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#LDN</a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a>

WHNIn this interview, Denise Lopez-Majano opens up about her family’s journey with ME and the tireless advocacy work it’s inspired. She shares the challenges her sons face, the medical dismissal they’ve endured, and her fight to bring awareness and change to a system that continues to overlook millions.Watch the full interview: <a href="https://www.youtube.com/watch?v=WStfZRJp0D4" rel="nofollow noopener" translate="no" target="_blank">https://www.youtube.com/watch?v=WStfZRJp0D4</a><a href="https://forall.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#longcovid</a> <a href="https://forall.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://forall.social/tags/mecfsawareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfsawareness</a>

Valerie Roney2) after that we'll need people to seek out connections to NGO's, gov't orgs, and similar resources. And/or ppl with the skills to start up a Turtle Bower non-profit to run this place. We'll need something akin to the Habitat for Humanity model of an interest free loan, and/or orgs like <a href="https://disabled.social/tags/CAEH" class="mention hashtag" rel="nofollow noopener" target="_blank">#CAEH</a> (Canadian Alliance to End Homelessness) who want to support novel housing concepts (especially re disabled and marginalized ppl). <a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#longCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> orgs may be good overlap. 🧵

Maggie Maybe“Altogether, these results suggest that ME/CFS and LC patients have an ongoing, over-activation of CD8+ T cells by some persistent antigen, leading to T cell exhaustion. This is similar to what is observed in a person with chronic viral infections or in tumor environments.”(There’s a in the link if you prefer watching over reading.)<a href="https://solvecfs.org/a-guide-to-investigating-immune-dysfunction-t-cell-exhaustion-via-single-cell-immune-profiling-in-me-cfs-and-long-covid/" rel="nofollow noopener" translate="no" target="_blank">https://solvecfs.org/a-guide-to-investigating-immune-dysfunction-t-cell-exhaustion-via-single-cell-immune-profiling-in-me-cfs-and-long-covid/</a> <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a>

Maggie Maybe<a href="https://med-mastodon.com/@luckytran" class="u-url mention" rel="nofollow noopener" target="_blank">@luckytran</a> they took <a href="https://zeroes.ca/tags/ADHD" class="mention hashtag" rel="nofollow noopener" target="_blank">#ADHD</a> off the list?? No <a href="https://zeroes.ca/tags/MS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MS</a>? <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> is a Neuroimmune disease, that has never been on the list but I checked the box for autoimmune when I wanted a <a href="https://zeroes.ca/tags/booster" class="mention hashtag" rel="nofollow noopener" target="_blank">#booster</a> in 2021. Medicare already pays thousands of dollars every few months for Botox or CGRP medications, if I end up getting admitted for vomiting from a migraine it costs them $25,000.They might want to reconsider adding <a href="https://zeroes.ca/tags/migraine" class="mention hashtag" rel="nofollow noopener" target="_blank">#migraine</a>.Well I guess nobody can hassle me for not getting the vaccine because even though I feel profoundly disabled lately, I don’t have any conditions on this list. That’s wild.

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